THE JONAH FINN FOUNDATION
CARE FOR RARE Collaborative Awards: $600,000 to Advance Research in Aggressive Childhood Brain Tumors
The Jonah Finn Foundation is announcing $50,000 in funding for rare childhood brain cancers in part of the Care For Rare collaborative effort. A $200,000 grant has been awarded to support research on Embryonal Tumor with Multilayered Rosettes (ETMR).
The recipient is:
Johannes Gojo, MD, PhD, Professor of Pediatric Neuro-Oncology, Medical University of Vienna, Austria, for
“Advanced Resistance Mapping and Overcoming Relapse of ETMR (ARMOR)”
This grant, totaling $200,000, aims to advance discoveries to improve outcomes in this rare and aggressive pediatric brain tumor that affects very young children.
About ETMR
ETMR almost exclusively affects children under four years of age and currently has a dismal 5-year survival rate of just 10–30%, despite intensive therapies. Driven by unique molecular features, these tumors are often therapy-resistant or relapse quickly, and very little is known about why current treatments fail.
About The CARE FOR RARE Collaborative
The CARE FOR RARE Collaborative is a bold effort to address the lack of research and funding in these tumor types with the goal to improve survival in these children and includes the following charities:
The Jonah Finn Foundation
The Bibi Fund
Gold Ribbon Kids Cancer Foundation
Solving Kids’ Cancer
Hope4ATRT Foundation
Ty Louis Campbell Foundation
"Finding a cure for ETMR is not just a mission for The Jonah Finn Foundation; it's a deeply personal journey fueled by our commitment to transform the landscape of pediatric brain cancer research. We believe that by catalyzing groundbreaking preclinical studies and fostering collaboration among scientists worldwide, we can ignite hope for countless families facing the challenges of rare brain cancers. Together, we are dedicated to eradicating ETMR and ensuring that no child has to endure the hardships of this disease."
- Suzy Amor, Vice President of the Jonah Finn Foundation
About the Funders
The Jonah Finn Foundation: Its mission is to catalyze groundbreaking preclinical research into ETMR and other rare pediatric brain cancers, fostering hope for a cure by supporting transformative research and encouraging global scientific collaboration.
The Bibi Fund for Rare Childhood Cancer Research funds pediatric cancer research with a focus on the rarest and most aggressive childhood brain cancers.
Gold Ribbon Kids Foundation is dedicated to advancing research, advocacy, and support for children and families affected by pediatric cancer. Our mission is to drive innovation in treatments for rare childhood cancers while providing hope and resources to families in need. We partner with leading researchers and organizations worldwide to accelerate cures.
Solving Kids’ Cancer is not just our name, it’s our mission. We help accelerate new clinical trials of next-generation treatments including immunotherapy, targeted agents, and combination therapies through research advocacy, with an understanding of the childhood cancer landscape and current unmet needs to wisely invest in innovative projects.
Hope4ATRT Foundation, a research entity of Out of Zion, Inc., supports families fighting ATRT by providing up-to-date resources and research. Our mission is to be a centralized site where parents can find information to navigate their child’s diagnosis, treatment, and support.
The Ty Louis Campbell Foundation
The Ty Louis Campbell Foundation is a nonprofit organization that funds innovative research and clinical trials specifically geared toward the treatment of the most aggressive childhood cancers with a strong focus on brain tumors.
Erin DiMauro, President & Suzy Amor, Vice President